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Attitudes of the General Public, Cancer Patients, Family Caregivers, and Physicians Toward Advance Care Planning: A Nationwide Survey Before the Enforcement of the Life-Sustaining Treatment Decision-Making Act

  • 주제(키워드) Advance care planning , advance directives , decision-making , life support care , terminal care
  • 주제(기타) Health Care Sciences & Services; Medicine, General & Internal; Clinical Neurology
  • 설명문(일반) [Park, Hye Yoon] Seoul Natl Univ Hosp, Dept Psychiat, Seoul, South Korea; [Kim, Young Ae] Natl Canc Ctr, Natl Canc Control Inst, Goyang, South Korea; [Sim, Jin-Ah; Yun, Young Ho] Seoul Natl Univ, Coll Med, Dept Biomed Sci, Seoul, South Korea; [Sim, Jin-Ah; Yun, Young Ho] Seoul Natl Univ, Coll Med, Canc Res Inst, Seoul, South Korea; [Lee, Jihye] Seoul Natl Univ, Coll Med, Dept Biomed Informat, Seoul, South Korea; [Ryu, Hyewon] Chungnam Natl Univ Hosp, Dept Internal Med, Daejeon, South Korea; [Lee, Jung Lim] Daegu Fatima Hosp, Dept Hematooncol, Daegu, South Korea; [Maeng, Chi Hoon] Kyung Hee Univ Hosp, Dept Med Oncol & Hematol, Seoul, South Korea; [Kwon, Jung Hye] Hallym Univ, Kangdong Sacred Heart Hosp, Coll Med, Dept Internal Med, Seoul, South Korea; [Kim, Yu Jung] Seoul Natl Univ, Bundang Hosp, Dept Internal Med, Div Hematol & Med Oncol, Seongnam, South Korea; [Nam, Eun Mi] Ewha Womans Univ, Coll Med, Dept Internal Med, Seoul, South Korea; [Shim, Hyun-Jeong] Chonnam Natl Univ, Med Sch, Dept Hematooncol, Gwangju, South Korea; [Song, Eun-Kee] Chonbuk Natl Univ, Med Sch, Dept Internal Med, Jeonju, South Korea; [Jung, Kyung Hae] Univ Ulsan, Asan Med Ctr, Coll Med, Dept Oncol, Seoul, South Korea; [Kang, Eun Joo] Korea Univ, Guro Hosp, Coll Med, Div Hematooncol,Dept Internal Med, Seoul, South Korea; [Kang, Jung Hun] Gyeongsang Natl Univ, Postgrad Med Sch, Dept Internal Med, Jinju, South Korea; [Yun, Young Ho] Seoul Natl Univ, Coll Med, Dept Family Med, 103 Daehak Ro, Seoul 03080, South Korea; [Yun, Young Ho] Seoul Natl Univ, Inst Hlth Policy & Management, Seoul, South Korea
  • 등재 SCIE, SCOPUS
  • OA유형 Bronze
  • 발행기관 ELSEVIER SCIENCE INC
  • 발행년도 2019
  • URI http://www.dcollection.net/handler/ewha/000000160071
  • 본문언어 영어
  • Published As http://dx.doi.org/10.1016/j.jpainsymman.2018.12.332
  • PubMed https://pubmed.ncbi.nlm.nih.gov/30593911

초록/요약

Context. To respect a patient's wish for end-of-life care, "the Act on Decisions on Life-Sustaining Treatment for Patients at the End-of-Life" was enacted in South Korea in 2016. Current understanding of people who would be involved in advance care planning (ACP) is crucial to disseminate it systematically. Objectives. The objective of this study was to investigate awareness and attitudes toward ACP in South Korea. Methods. A multicenter, nationwide cross-sectional study was conducted, a survey regarding ACP among four groups that would have different positions and experiences: 1001 cancer patients, 1006 family caregivers, 928 physicians, and 1241 members of the general public. Results. A total of 15% of the general population, 33% of the patients and caregivers, and 61% of the physicians had knowledge of advance directives. More than 64% of the general population, above 72% of the patients and caregivers, and 97% of the physicians were willing to do so when the disease status was aggravated or terminal. The possibility for changing the plan, uncertainty as to whether directives would actually be followed, and psychological discomfort were common reasons for not wanting to engage in ACP. Routine recommendations for a specific medical condition, heightened accessibility, and health insurance support were common factors that could help facilitate ACP. Conclusion. Our findings suggest that strategies for promoting ACP should reflect different perspectives among the general public, patients, family caregivers, and physicians. Public advocacy, resources for approaching and integrating ACP into routine health care, as well as systematic support provisions are needed. (C) 2018 American Academy of Hospice and Palliative Medicine. Published by Elsevier Inc. All rights reserved.

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