Discordance between Physician and the General Public Perceptions of Prognostic Disclosure to Children with Serious Illness: a Korean Nationwide Study
- 주제(키워드) Pediatric Palliative Care , Prognostic Disclosure to Children , Pediatric Advance Care Planning , Republic of Korea
- 주제(기타) Medicine, General & Internal
- 설명문(일반) [Kim, Min Sun; Park, June Dong] Seoul Natl Univ, Coll Med, Dept Pediat, Seoul, South Korea; [Lee, Jihye; Yun, Young Ho] Seoul Natl Univ, Coll Med, Dept Biomed Informat, Seoul, South Korea; [Sim, Jin-Ah; Yun, Young Ho] Seoul Natl Univ, Coll Med, Dept Biomed Sci, 103 Daehak Ro, Seoul 03080, South Korea; [Kwon, Jung Hye] Hallym Univ, Coll Med, Kangdong Sacred Heart Hosp, Dept Internal Med, Seoul, South Korea; [Kang, Eun Joo] Korea Univ, Coll Med, Guro Hosp, Dept Internal Med, Seoul, South Korea; [Kim, Yu Jung] Seoul Natl Univ, Coll Med, Bundang Hosp, Dept Internal Med, Seongnam, South Korea; [Lee, Junglim] Daegu Fatima Hosp, Dept Hematooncol, Daegu, South Korea; [Song, Eun-Kee] Chonbuk Natl Univ, Med Sch, Dept Internal Med, Div Hematol & Oncol, Jeonju, South Korea; [Kang, Jung Hun] Gyeongsang Natl Univ, Dept Internal Med, Jinju, South Korea; [Nam, Eun Mi] Ewha Womans Univ, Dept Internal Med, Coll Med, Seoul, South Korea; [Kim, Si-Young] Kyung Hee Univ Hosp, Dept Med Oncol & Hematol, Seoul, South Korea; [Yun, Hwan-Jung] Chungnam Natl Univ Hosp, Dept Internal Med, Daejeon, South Korea; [Jung, Kyung Hae] Univ Ulsan, Coll Med, Asan Med Ctr, Dept Oncol, Seoul, South Korea; [Yun, Young Ho] Seoul Natl Univ, Coll Med, Dept Family Med, Seoul, South Korea
- 발행기관 KOREAN ACAD MEDICAL SCIENCES
- 발행년도 2018
- URI http://www.dcollection.net/handler/ewha/000000156250
- 본문언어 영어
- Published As http://dx.doi.org/10.3346/jkms.2018.33.e327
초록/요약
Background: It is difficult to decide whether to inform the child of the incurable illness. We investigated attitudes of the general population and physicians toward prognosis disclosure to children and associated factors in Korea. Methods: Physicians working in one of 13 university hospitals or the National Cancer Center and members of the general public responded to the questionnaire. The questionnaire consisted of the age appropriate for informing children about the prognosis and the reason why children should not be informed. This survey was conducted as part of research to identify perceptions of physicians and general public on the end-of-life care in Korea. Results: A total of 928 physicians and 1,241 members of the general public in Korea completed the questionnaire. Whereas 92.7% of physicians said that children should be informed of their incurable illness, only 50.7% of the general population agreed. Physicians were also more likely to think that younger children should know about their poor prognosis compared with the general population. Physicians who opposed incurable illness disclosure suggested that children might not understand the situation, whereas the general public was primarily concerned that disclosure would exacerbate the disease. Physicians who were women or religious were more likely to want to inform children of their poor prognosis. In the general population, gender, education, comorbidity, and caregiver experience were related to attitude toward poor prognosis disclosure to children. Conclusion: Our findings indicate that physicians and the general public in Korea differ in their perceptions about informing children of poor prognosis.
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